I was diagnosed with Motor Neurone Disease (MND) in August 2012.
Having been Antrim Gaelic football captain and team mate of Rockliffe Hall’s Chief Executive, Eamonn Elliott, at Celtic Boys Belfast, I’m thrilled that he and two of his executive team at the resort are taking on one of the toughest triathlons in the world, to raise money for deterMND.
The Trust was established on my behalf and strives to raise funds and awareness of MND through organised events and press coverage, as well as raising funds MND research.
Eamonn and his colleagues, Katie Scott (Sales and Marketing Manager) and Richard Allen (The Orangery’s Executive Chef) will tackle the Helvellyn Triathlon this weekend (September 3rd), which includes a swim in Ullswater lake, a cycle up the infamous “struggle” to the top of Kirkstone Pass (1489ft) and the run up and back down Helvellyn (3118ft). No mean feat and I feel incredibly honoured that they’re putting themselves through this to raise money for my charity.
Rockliffe will also be hosting a special golf day on Monday 23rd October to raise additional funds and I very much look forward to visiting the stunning resort for this event.
MND is a neurological condition for which there is no cure, with an average prognosis of 2-5 years after diagnosis. The disease causes motor neurons to stop functioning, meaning signals fail to reach their intended muscles. This causes the muscles to waste and die, leading to complete immobility. Senses such as sight, hearing and touch remain unaffected.
Since 2013 deterMND has raised in excess of £140,000 for MND research and to support the MND Association. In 2015 and 2016 we made donations to Project MinE, which focuses on the sequencing of DNA in order to identify and ultimately treat faulty genes associated with MND. With the support of our volunteers, fundraisers and trustees we will make further donations in 2017/18 to research projects which align to the aims and objectives of deterMND.
The Rockliffe triathlon team has launched a crowd fundraising page which is now live at https://www.justgiving.com/crowdfunding/rockliffe-hall-deterMND and is inviting people to sponsor them ahead of the event.
Good luck team Rockliffe, I’ll be rooting for you!